Patient Generated Data 2.0 Workshop

April 15, 2019

On April 15, 2019, BeACCoN hosted its second workshop on patient-generated data. This meeting brought together 35 patients, researchers, developers, and policymakers to discuss the PGD initiative in Ontario. Together, stakeholders explored models of PGD that could inform an approach in Ontario, looked at the current state of PGD in greater detail, and discussed a draft framework and principles for PGD.

Understanding the Collective Impact of SPOR in Ontario

January 21, 2019

On January 21, 2019, BeACCoN hosted a workshop to determine how the SPOR Enterprise in Ontario has enabled improved health outcomes and enhanced health care experience for patients through integration of evidence at all levels of the health care system. It also aimed to examine the collective impact to date of Patient Oriented Research and how we can work together to enable greater collective impact in Ontario. 

BeACCoN Advisory Committee Meeting 2018

May 2nd, 2018

On May 2nd, 2018, BeACCoN held its Third Annual Advisory Committee Meeting. This brought together 25 stakeholders, including patients, researchers, and policymakers to provide advice on BeACCoN's strategic direction for the next two years. BeACCoN asked for advice on three main areas: Metrics and Infrastructure, Evaluation Framework, and Innovations for Complex Needs

Patient Generated Data Stakeholder Workshop

September 10th, 2018

A meeting was held on September 10th, 2018 at Women's College Hospital, which brought together 38 patients, caregivers, researchers, developers, and policymakers to discuss the priorities and principles for patient-generated data in Ontario. As a first step to supporting Ontario SPOR projects, this workshop was held to better understand project requirements around patient-generated data and how BeACCoN can best support SPOR researchers. 

Workshop on Patient Engagement for Underserved Populations

October 31st, 2018

The Ontario SPOR SUPPORT Unit (OSSU) and BeACCoN, arranged a roundtable workshop on October 31st, 2018. The purpose of the day was to bring together researchers with experience of working with underserved, marginalized, and complex populations, as well as patient and caregiver partners who have worked with them in these areas.

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