2019 OSSU-BeACCoN PREMs and PROMs Workshop
October 3, 2019
On October 3rd, 2019, the Ontario SPOR Support Unit (OSSU) and the Better Access and Care for Complex Needs (BeACCoN) Network co-hosted a workshop on patient-oriented measurement in the Ontario Health System. The purpose of this workshop was to bring together patients, researchers, decision makers, clinicians and other interested stakeholders to discuss the principles that can be used to select standardized metrics that can support the Ministry of Health, the Ontario Health Teams (OHTs), and patient care. The discussion also centered on collaborating together over both the short and longer term to join together the numerous different efforts in the province on this issue, and how to reliably test, implement and scale any desired measures for the benefit of patients, Ontario Health Teams, and the Ministry of Health.
Patient Generated Data 2.0 Workshop
April 15, 2019
On April 15, 2019, BeACCoN hosted its second workshop on patient-generated data. This meeting brought together 35 patients, researchers, developers, and policymakers to discuss the PGD initiative in Ontario. Together, stakeholders explored models of PGD that could inform an approach in Ontario, looked at the current state of PGD in greater detail, and discussed a draft framework and principles for PGD.
Understanding the Collective Impact of SPOR in Ontario
January 21, 2019
On January 21, 2019, BeACCoN hosted a workshop to determine how the SPOR Enterprise in Ontario has enabled improved health outcomes and enhanced health care experience for patients through integration of evidence at all levels of the health care system. It also aimed to examine the collective impact to date of Patient Oriented Research and how we can work together to enable greater collective impact in Ontario.
SPOR Summit 2018
November 13-15, 2018
Mapping the Progress of Patient-Oriented Research in Canada
The Summit provided an opportunity for SPOR stakeholders to share knowledge and experiences, highlight early successes and share lessons learned, and hear from experts. Participants had an opportunity to participate in panel discussions, plenary and poster sessions, and network with others involved in patient-oriented research.
BeACCoN Advisory Committee Meeting 2018
May 2, 2018
On May 2nd, 2018, BeACCoN held its Third Annual Advisory Committee Meeting. This brought together 25 stakeholders, including patients, researchers, and policymakers to provide advice on BeACCoN's strategic direction for the next two years. BeACCoN asked for advice on three main areas: Metrics and Infrastructure, Evaluation Framework, and Innovations for Complex Needs.
Patient Generated Data Stakeholder Workshop
September 10, 2018
A meeting was held on September 10th, 2018 at Women's College Hospital, which brought together 38 patients, caregivers, researchers, developers, and policymakers to discuss the priorities and principles for patient-generated data in Ontario. As a first step to supporting Ontario SPOR projects, this workshop was held to better understand project requirements around patient-generated data and how BeACCoN can best support SPOR researchers.
Workshop on Patient Engagement for Underserved Populations
October 31, 2018
The Ontario SPOR SUPPORT Unit (OSSU) and BeACCoN, arranged a roundtable workshop on October 31st, 2018. The purpose of the day was to bring together researchers with experience of working with underserved, marginalized, and complex populations, as well as patient and caregiver partners who have worked with them in these areas.